Epilepsy Information & Resources
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Provided for Informational Purposes Only.
OneWorld, Inc is not recommending any of these sites as a medical resource.
Please speak with your personal clinician about any Epilepsy questions or issues of concern. - Epilepsy Therapy Project: National Institute of Neurological Disorders & Stroke
Epilepsy Therapy Project P.O. Box 742. Middleburg, VA 20118. Tel: 540-687-8077. Fax: 540-687-8066
E-Mail: info@epilepsytherapyproject.org
www.ninds.nih.gov › Find People › Partner Organizations
Description: Nonprofit corporation that works to advance new treatments for people living with epilepsy. Supports innovative research in academia and industry. Provides information through the www.epilepsy.com website.
- Dravet Syndrome Information Page: National Institute of Neurological Disorders & Strokes is a division of the National Institute of Health (a federal agency). The agency offers comprehensive information on various neurological diseases and disorders; they also offer information in Spanish.
NINDS information page about Dravet syndrome, a childhood-onset epilepsy.
www.ninds.nih.gov › Disorders A - Z (including Lennox-Gastaut Syndrome, SUDEP & others)
Sudden Unexplained Death in Epilepsy (SUDEP): Learn much more from the NINDS/NIH link above.
- Epilepsy: MedlinePlus
From the National Institutes of Health National Institutes of Health(Mayo Foundation for Medical Education and Research); Epilepsy Surgery
www.nlm.nih.gov/medlineplus/epilepsy.html
- Seizures & Epilepsy: MedlinePlus Interactive Health Tutorial
Seizures & Epilepsy. X-Plain Interactive Tutorial, published by the Patient Education Institute and licensed by the National Library of Medicine.
www.nlm.nih.gov/.../tutorials/seizuresandepilepsy/.../index.htm
- NIH OSE - Research in the News: Video Game Epilepsy (Grades 9-12)
Educational Resources
science.education.nih.gov/
- Seizures: MedlinePlus
NIH: National Institute of Neurological Disorders and Stroke
www.nlm.nih.gov/medlineplus/seizures.html - IDEA League Family Network:
The IDEA League Family Network is for parents and careers of children diagnosed with Dravet Syndrome. Learn more at: www.idea-league.org/famnet/
- Epilepsy Fdn-New Therapy Grant Program
Epilepsy Foundation and Epilepsy Therapy Project ... alternative therapy that prevents the trauma and resulting complications of resective surgery.
www.epilepsyfoundation.org/research/ntgp.cfm
- http://my.epilepsy.com/mmc/video
This site has a complete set of short videos; each video addresses one specific aspect of epilepsy and answers the most obvious and often asked questions. Each video also has a downloadable transcript; the transcripts are free. In researching the topic, OneWorld, Inc has found the materials on this site to be informative.
- A series of informative videos with free downloadable transcripts:
- http://www.youtube.com/ETPepilepsyvideos/
An interview with Steve Grunberg and an epilepsy specialist.
- Seizure Tracker: This web site states it is dedicated to providing patients and doctors with free comprehensive tools to help understand the relationships between seizure activity and anti-epileptic medications.
OneWorld, Inc. has not verified this claim, and has no means of doing so. We provide the link on the recommendation of the CT Epilepsy Advocate. We assume no responsibility for the veracity of the claim and advise those who link on to check and verify before entering into any arrangements with this or any other of the links listed here.
www.seizuretracker.com - Temporal Lobe Resection on MedicineNet.com
What happens before temporal lobe resection surgery?
www.medicinenet.com › ... › temporal lobe resection index
Click HERE for a preview video from our program,
"Understanding Epilepsy Disorder".
Q: What is Epilepsy?
A: Epilepsy is a neurological condition that from time to time produces brief disturbances in the normal electrical functions of the brain. Epilepsy affects more than 50 million people in the world, over 3 million people in the United States and approximately 60,000 people in Connecticut. (CT Epilepsy Advocate, Robert Fiore, founder)
These are additional links to Independent organizations:
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Resective Surgery (3:52) |
This video provides details on resective surgery for epilepsy, done to remove a part of the brain producing seizures. |
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Risks & Benefits of Surgery, Part 1 (3:31) |
If you are considering epilepsy surgery you should understand the pros and cons of undergoing this type of treatment. (Part 1 of 2) |
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Risks & Benefits of Surgery, Part 2 (5:00) |
Epilepsy surgery can be very helpful, but it does not always work and it has risks. Learn more here. (Part 2 of 2) |
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Resective Surgery for the Treatment of Epilepsy |
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The health or education information provided on this web site is not intended to constitute medical or educational advice or the provision of medical or educational services. By posting and maintaining this website and its contents, OneWorld Progressive Institute, Inc does not intend to solicit business from community participants, nor is this information intended to be a substitute for visits to medical doctors, other health professionals, and/or educators located in Greater New Haven or elsewhere within our contact area.