Lighting candles of information
Patient Information #2 - OneWorld's Cancer Education Series 2007
Knowledge is indeed Power!  Get informed.  Be an active partner in your own health care.
Patient Information provided anywhere on this web site is intended as a guide;
consult your health care provider for information specific to your health care needs.
OneWorld Progressive Institute, Inc., is a 501(C)3
Community Organization and Public Charity which
focuses on:
  • Health Care Literacy, Access, Advocacy
  • Reducing Disparities, and
  • Improving Health Care Outcomes for
    Disenfranchised Populations.

We believe that effective communication is an
essential aspect of effective health  care delivery.
The OneWorld, Inc., Cancer Education Health Literacy Series is arranged in
sequence.  All information is provided to better inform the community.

Some programs have multiple parts; however, each program is complete within itself;
one does not have to see the series to fully understand the topic being discussed.  Ask to
see these programs on your local access station in your town.  
Visit Patient Information1
of this web site to find more health literacy program information

Copies of these programs are also available to viewers; order a copy from OneWorld, Inc.
by calling (203) 407-0250, or sending us an email to: oneworldpi@yahoo.com

We greatly appreciate the help of  physicians from Yale & St. Raphael, who have worked
with us to bring you these programs.  

We are especially indebted to Renee Gaudette, Public Affairs Manager, Yale Cancer Center
and Dr. Joseph Cardinale, Medical Director of the Father McGivney Cancer Center, for
their help in recruiting physicians to participate in our programs.  All of the physicians
donated their time to
OneWorld and to the community.  We thank them greatly.

N'Zinga S. Shäni, Director, OneWorld, Inc.
OneWorld Progressive Institute, Inc. Presents Its:
"21st Century Conversations" Health Care Literacy Series - Cancer Educ.  PT 1
Topic:   “Diversity in Breast Cancer – Genomics to Racial Disparities”

Guests:  Lyndsay Harris, M.D., Director;   Shon Black, M.D., Surgeon
Anna Martin, MSW, Coordinator,   Yale Breast Cancer Disparities Program

1.      Molecular Profiling in Breast Cancer
a)        Microarray Profiling:
¨        Explains behavior of some genes
¨        Sheds light on mechanisms of resistance
¨        Helps to better understand how gene expression patterns vary, and
¨        How gene expression influence patient outcomes

b)    Molecular Classifications Are Important Because They:
¨          Reduce heterogeneity/differences of patient groups
¨        Increase likelihood of response to therapy
¨        Make class distinction between Estrogen Receptor (ER) Positive and/or
Progesterone Receptor (PR) Negative tumors
¨        ER Positive tumors respond to anti-estrogenic therapy
¨        ER Negative tumors do not respond to such therapy

c) Expression Profiling Identifies Subgroups Across Platforms

2.  “Triple Negative Breast Cancers – A Bad Actor with Unique Biologic Features”
“Expressed as: ER/PR/HER2” – Represents an aggressive and poorly  
understood  subclass of Breast  Cancer with a much worse outcome.                 
(Journal of Clinical Pathology 2006)
¨        Affect African-American women more than Caucasian women
¨        Affect AA women at a younger age
¨        Higher mortality rate for AA women than Caucasians

3.      Differences in Breast Cancer by Race:
¨        Triple Negative tumors occur more frequently in pre-menopausal
African-American women
African-American women under age 50 have 39% frequency of these cancers
Caucasian women of same age have 16% Triple Negative Cancers
AA women with Breast Cancer have 37% higher death rate
AA women under age 35 have higher incidence of Breast Cancer
AA women with TNC have worse prognosis with metastases (spread)

4.     Differences May Be Accounted for Due to:
¨           Limitations to access and screening programs
¨         More aggressive tumor biology
¨         Increased tumor genetic alterations
¨         Inadequate oncologic treatment

5.        The Good News:
  • Clinicians at Yale (including Dr. Harris) & Office for Elimination of Cancer
    Disparities are studying to prevent:
  • a)   The worse outcomes for African-American women
  • b)   The contributions of genetic alterations in young AA women with /basal-like
    breast cancers
  • c)   They will evaluate diagnostic imaging modality most frequently use, and which
    is most effective
  • d)  Will examine genetic alterations in minority & non-minority patients
  • e)   Implement prevention programs to increase local community involvement in
    breast cancer awareness
  • f)   Improvement in follow-up system of abnormal mammograms & identify high
    risk women early
  • g)   Goal to reduce negative outcomes for target populations


  • Breast Imaging & Mammogram Mobile Van (203) 688 – 6800
  • Medical Oncology (203) 785-4191
  • Genetic Counseling (203) 764- 8400
  • Patient Care Coordinator (203) 785-2328
  • American Cancer Society
  • 1·800·ACS·2345 -www.cancer.org

Moving On After Cancer Treatment  -  (HC Lit. Cancer Educ Part 5)
Guests:
  Nina Kadan-Lottick, M.D., Director
Hero’s Clinic for Survivors of Childhood Cancer
Kenneth Miller, M.D., Director
CT Challenge Survivorship Clinic &
Dir. of Supportive Care, Yale Cancer Center        

1. What is the definition of a cancer survivor?
Someone who goes on to live a life of normal longevity
2. How many cancer survivors are there in the United States?
Over 11 million; in CT 110,000
3. How do these numbers compare with a decade or more ago?
There is a 30% increase in cancer survivors
4. How do the caregivers recover along with the cancer survivors? –  
Caregivers learn much from those with cancer

5. What are the good and bad side effects of a cancer experience?
  • When patients are first diagnosed, it is often hard to think of cancer as having a positive
    impact on life; however, many people learn to live more fully and more productively after
    surviving cancer.  

  • The Survivorship Center & The Heroes Clinic serve to provide evaluative care, prevention
    screening and attend to the emotional and psychological needs of survivors, caregivers,
    medical professionals and loved ones.

  • There are still emotional and physical needs to be met, and psychological issues associated
    with the diagnosis and treatment of cancer. After care is important!

6. What services will be offered at the CTC Survivorship Clinic?
  • The Survivorship Clinic is available to cancer survivors throughout the state and it is not
    only for patients who have been treated at Yale. Who is eligible to be seen at the CTC
    Survivorship Clinic?

  • Yale Cancer Center also offers a variety of supportive therapies for our patients.  
  • The Heroes' Clinic has a grandmother!  That is how long people are surviving cancer!
    She started as a child.

KEY MESSAGE POINTS:
1.   Survivors are a growing population that has special needs. HOPE.
2.   Both cancer survivors in active treatment and long term survivors are a priority   
at YCC. Care for the continuum.

Credits:
  •  Yale Cancer Center is grateful to the riders, volunteers, and donors of the
    Connecticut Challenge, an annual bike ride in Fairfield, CT, for the support of the
    Connecticut Challenge Survivorship Clinic.  
www.ctchallenge.org
Call (203) 785-CARE for more information on Survivorship.

Topic:   “Breast Cancer Diagnosis & Treatment Options” (Cancer Educ) PT 2

Guests:  Lyndsay Harris, M.D., Director,  Yale Breast Cancer Program (YBCP)
Shon Black, M.D., Surgeon, YBCP
Meena Moran, M.D., Radiation Oncologist, YBCP                        

Breast Cancer is Common
  •      Less than 39 years old:  1 in 231 (0.5%)
  •     40 – 59 years old:  1 in 25 (4%)
  •     60 – 79 years old:  1 in 15 (7%)
  •     If a women lives to 90 years old: 1 in 7 (14%)

Breast Health and Cancer Prevention
  •        Perform monthly self breast exams.
  •        Mammogram every year starting at 40 years of age.
  •        Limit alcohol and smoking. -  Maintain a healthy weight.
  •        Limit estrogen replacement therapy to 5 years.
  •        Have a doctor examine you as soon as you notice a breast problem.

Breast Abnormalities
  •     Breast mass that you can feel. -  Nipple discharge.& ·Abnormal mammogram.
  •    Benign Breast Conditions
  •    Breast mass - cyst, fibro adenoma, galactocele
  •    Nipple discharge – papilloma, dilated ducts
  •    Mammogram – calcium, normal breast tissue, scar tissue

Breast Cancer
·        May present as a mass, nipple discharge, or abnormal mammogram.
·      Have a breast exam by a doctor, a mammogram, and possibly an ultrasound.

Types of Breast Tissue Biopsies : Needle biopsy with a mammogram;
Needle biopsy with  an ultrasound,  Needle biopsy with a MRI &  Surgery

Types of Breast Cancer :  Non-Invasive,  Invasive,  Ductal,  Lobular &  Inflammatory

Breast Cancer Characteristics:  Size, Grade, Receptors, Estrogen, Progesterone,     
HER2, Axillary Lymph Node Involvement  &   Distant Metastasis

Breast Cancer Treatment:  Surgery,  Medicines,  Radiation
Surgery - Takes out the cancer in the breast and lymph nodes.=   Lumpectomy
·       Mastectomy ± reconstruction, - Sentinel lymph node biopsy &  Axillary lymph    
node dissection

Medical Oncology
  • Medicines given in the vein or by mouth to prevent or treat cancer in other parts of the  body:    
    Chemotherapy,  Hormonal Therapy,  Herceptin,  Oncotype DX
  • Survivorship Program

Radiation Oncology : Beams given to the chest ± axilla for local cancer control.
·        Whole breast radiation  &   Partial breast radiation

Current Studies at Yale Breast Center
·        Breast Tomosynthesis
·      Partial Breast Radiation
·      Chemotherapy Trials

High Risk Patients
  •         Consider Tamoxifen or a related medicine.
  •       Consider breast MRI.
  •       Twice yearly breast exams by a physician.
  •       Continue yearly mammogram.
  •       Consider genetic counseling.

If you get breast cancer:  Don’t lose hope!  Seek treatment! Get Informed!
·       Take time to learn what your options are.  Seek support from family and friends.

For Additional Information:
·          Yale Breast Center: 203-785-2328
·        Mammogram Van: 203-688-8600

Websites
·                www.breastcancer.org
·               www.komen.org
·               www.nci.org

Yale Cancer Center – 866 – Yale Cancer; Web site: yalecancercenter.org
McGivney Cancer Center:
www.srhs.org/cancer

1·800·ACS·2345, www.cancer.org also: www.breastcanceralliance.org   
Health Care Literacy Series - Cancer Education PT 4
Topic: “Treatment Advances in Lung Cancer”
Guests:  Frank Detterbeck, M.D.,  Co-Director, TOP Program
Professor of Thoracic Surgery
Yale University School of Medicine
Irene Scanlon, LCSW, TOP Program

Cancer Facts:
  • Lung cancer is the leading cause of cancer death in the United States.
  • Lung cancer is the leading cancer killer among Caucasians, African Americans, Asians,
    and Hispanic males.
  • Lung cancer will kill nearly twice as many women as breast cancer this year.
  • Current smokers: 35-40% of new lung cancer cases;
  • Former smokers: 50% of new lung cancer cases;
  • Never smoked: 10-15% of new lung cancer cases.
  • Lung Cancer causes over 30% of all cancer deaths.
  • The lungs are part of the respiratory system.
  • The Lungs supply oxygen to the blood while removing carbon dioxide.
  • Lung cancer may spread to the lymph nodes or other tissues in  the chest (including the
    other lung).
  • In many cases, lung cancer may also spread to other organs of the body, such as the
    bones, brain, or liver.

Types of Lung Cancer :
Lung Cancer, Non-Small Cell &  Lung Cancer, Small Cell

Risk Factors for Lung Cancer include the following:
·        Smoking cigarettes, cigars, or pipes now or in the past.
·        Being exposed to second-hand smoke.
·        Being exposed to asbestos or radon.

Lung Cancer Screening
  •   Screening is important because by the time symptoms appear cancer may have
begun to spread              
  •   Screening is looking for cancer before a person has any symptoms.
  •   Screening helps to find cancer at an early stage.
  •   When abnormal tissue or cancer is found early, it may be easier to treat.

Two tests have commonly been used to screen for lung cancer are:
  •        Chest x-ray & Sputum Cytology - Testing Saliva for Cancer Cells.
  •        Even stage 111 & 1V Cancers are treatable.  Get more information!


OneWorld, Inc. defined.

OneWorld Progressive
Institute, Inc. is a 501 (C)3
charitiable, community
organization.

Our motto is:

"It is better to light a candle
than to curse the darkness."

Our goal is to bring reliable
and useful information to
the Greater New Haven as
well as the broader CT
community.  

We place particular
emphasis on:

  • Health care literacy
  • Access, Advocacy,
  • Reducing  disparities,
  • Improving health
    outcomes, and on
  • Education  
  • Effective
    Communication is an
    essential part of
    providing good care


We provide information
mainly through our public
access television programs.  
These programs are titled:

21st Century Conversations  &
N'Zinga's Journal.

They can be seen weekly on
various local access cable
systems in Southern CT.
Please visit our TV Schedule
page to learn more.

In order to provide the most
effective programs possible,
we invite your input.  

Tell us about the programs
and services offered by your
organization, and tell us
about the tyoe of  
information you need.  

If you are a service
organization, whom do you
serve, and in what
geographic areas?

What are the standard
requirements to benefit
from your organization?

We are striving to make a
positive difference.  Please
help us to present more
effective and informative
programs.

Send us an email to:
oneworldpi@yahoo.com,
or write to us at:

OneWorld, Inc.
P.O. Box 8662
New Haven, CT 06531

Provider Relationship Tips

  • The best patient is an
    informed patient.

  • Health care providers
    and patients should
    form cooperative
    teams, and be
    mutually respectful.  

  • In 2007, some
    providers still treat
    patients like children
    or underlings.

  • Some patients are
    intimidated by
    physicians and do not
    actively participate in
    their own care.  

  • There are patients
    who believe the entire
    responsibility for the
    quality of care rests
    with the provider.  
    That is not true.  

  • Providers depend on
    patients to provide
    reliable information
    that helps them to
    determine the needs
    of the patient.

  • These gaps in delivery
    must be plugged, and
    provider and patients
    must change in order
    to improve healthcare
    outcomes for all.

Are you a diabetic?

  • Do you carefully
    monitor your blood
    sugar levels?

  • Do you write them
    down?

  • As we age our
    memory might not be
    as reliable as when we
    were younger.

  • If you have been
    recently diagnosed as
    a diabetic

  • Team up with a
    Diabetes Educator at
    your local community
    health center or clinic

Learn about Cholesterol &
its effects on your body.

Check out these sites:
2sourcesofcholesterol

Visit: www.health-heart.
org/cholesterol.htm

You can also put in the
words "types of cholesterol"
in a search engine and find
more information.

To learn more about
Cervical Cancer and your
own risk factors, visit:

www.cdc.gov
www.nih.gov
www.cancer.gov
This is the Navigation Bar
for this page.  Click on to
any of the tabs below to
get to that page.
"21st Century Conversations" Health Care Literacy Series - Cancer Educ. Part 6

Topic:   “Treatment Advances in Prostate Cancer  Part 1  (Cancer Educ Series) PT 6
Guests:  Joseph Cardinale, M.D., Medical Director, Father Michael J. McGivney Cancer Center  &
head of the  Radiation  Oncology  Section.

Dr. Ralph DeVito, Urology Section Chief at the Hospital of Saint Raphael
Telephone number for Father Michael J. McGivney Center For Cancer Care
Hospital of Saint Raphael:  (203) 789-3131;  Web site: www.srhs.org
American Cancer Society -1·800·ACS·2345 - www.cancer.org

Community Participants: Dottie Green, Clive Spencer, Norman Forrester, Roderick Richardson,
and Xavier Pettway  

Some of the questions addressed on the program:
- What are the cancer basics?
- What is the epidemiology of prostate cancer?
- What do doctors do during the workup and medicals aspects that lead to diagnosis
- How do doctors take care of cancer patients?
- What are some of the potential treatments?
- What about new technology?
- What are the main factors that determine the type of treatment offered?
(Age, stage, type, family history?)
- The Laparoscopic Approach- benefits, challenges, outcomes, etc. -
- DaVinci Video presented

Questions from studio audience (audience members spent 30 mins with the doctors before the
program went on the air;  some of these questions were addressed during that time)
- What are the signs and symptoms that prostate cancer might be present?
- What are the most effective preventive or proactive steps men can and should take?
- Are there different forms of prostate cancer (aggressive, less aggressive, etc.)
- What are the most effective forms of treatment for prostate cancer?
- Does the effectiveness of the treatment depends on the type of cancer someone has?
-- Does the type of surgery affect cancer recurrence or survival?
- Is there less blood loss with laparoscopic surgery?
- What are the disadvantages of not being hands-on?
- How do the recovery times for people going through open surgery and laparoscopic surgery
compare?
(DaVinci Robotic video gave excellent explanation of benefits and reduced risks)
The doctors also discussed  Black men getting prostate at an earlier age & provided info about
Hispanic and Caucasian men, age, family history, etc.

The National Cancer Institute (NCI) provides information about cancer, including various
publications. You can order these materials by telephone or on the Internet. You can also read
them online and print your own copy.
All of the information below has been copied directly from the NCI web site at:

www.cancer.gov/cancertopics/wyntk/prostate.

The NCI also has a very comprehensive booklet with a wealth of excellent information about all
types of cancers.  Please visit the NCI web site listed above to learn more.

Words that may be new to readers appear in italics. The "Dictionary" section explains these terms.
Some words in the "Dictionary" have a "sounds-like" spelling to show how to pronounce them.
·        
Telephone (1-800-4-CANCER): Information Specialists at NCI's Cancer Information Service
can answer your questions about cancer. They also can send you NCI booklets, fact sheets, and
other materials.
·       
 Internet (http://www.cancer.gov): You can use NCI's Web site to find a wide range of up-to-
date information. For example, you can find many NCI booklets and fact sheets at :
http://www.cancer.gov/publications.

People in the United States and its territories may use this Govt. Web site to order printed copies.
This Web site also explains how people outside the United States can mail or fax their requests for
NCI booklets.
You can ask questions online and get help right away from Information Specialists through
LiveHelp at:
 http://www.cancer.gov/cis.

These are the Stages of Prostate Cancer:
·        Stage I: The cancer cannot be felt during a digital rectal exam. It is found by     chance when
surgery is done for another reason, usually for BPH. The cancer is only in the prostate.
·       
 Stage II: The cancer is more advanced, but it has not spread outside the prostate.
·    
    Stage III: The cancer has spread outside the prostate. It may be in the seminal vesicles. It
has not spread to the lymph nodes.
·     
   Stage IV: The cancer may be in nearby muscles and organs (beyond the seminal vesicles). It
may have spread to the lymph nodes. It may have spread to other parts of the body.
·        Recurrent cancer is cancer that has come back (recurred) after a time when it could not be
detected. It may recur in or near the prostate, or it may recur in any other part of the body, such as
the bones.

You may want to ask the doctor these questions before having a biopsy:
·        Where will the biopsy take place? Will I have to go to the hospital?
·        How long will it take? Will I be awake? Will it hurt?
·        What are the risks? What are the chances of infection or bleeding after the biopsy?
·        How long will it take me to recover?
·        How soon will I know the results?
·        If I do have cancer, who will talk to me about the next steps? When?

Saint Raphael's Community Outreach
- The Hospital of Saint Raphael is continuing its outreach to men in Greater New Haven  to screen
for prostate and colorectal cancer.
- Project Brotherhood, sponsored by Bayer, is gearing up for its third screening in April.  - Project
Brotherhood’s second screening on Sept 19, 2006, had a specific goal to attract African-American
men over age 45 and the underserved in the community.

- More than 160 men from Greater New Haven took part in Project Brotherhood’s free prostate
and colorectal cancer screening Sept. 19, 2006 at the Father Michael J. McGivney Center For
Cancer Care. Men streamed into the McGivney Center during the three-hour screening.  The
program is for all men in the Greater New Haven area. African-American men should get the
screening starting at age 40, Hispanics and Caucasian men need to check at age 50, unless they
have a family history of prostate cancer.

*
OneWorld's  community TV program "21st Century Conversations" and WYBC radio were
instrumental in getting the word out. The project also got a boost from Dr. Reggie Mayo,
superintendent of schools in New Haven, and Bishop William Philpot – both leaders in the
community.  

Topic:    Lung Cancer 101 & Integrative Medicine   (Cancer Educ. PT 3)

Guests:    Dr. Alicia McKelvey & Dr. John Federico, Thoracic Surgeons
Ms. Debra Scully – Manager, Integrative Medicine
McGivney Cancer Center

Part 1: : Risks for Developing Lung Cancer:
  •        Tobacco use
  •        Exposure to second-hand smoke
  •        Asbestos Exposure
  •        History of a previous non-lung cancer

Lung Cancer Symptoms:
  •       Persistent Cough
  •       Shortness of Breath
  •       Pain (in various areas depending on specific nature of the disease)
  •       Coughing up blood
  •       Weight loss and malaise
  •       Pneumonia that won’t clear up (lasts for a prolonged period)

What kind of work-up is done for lung cancer & how is it diagnosed?
Diagnosis and work-up of lung cancer go hand in hand.
a)  Most often someone gets a chest xray that shows an abnormality
b) This prompts a CT Scan of the chest (an x-ray that gives 3-dimentional info)
c) A Bronschoscopy (looking inside the airways with a fiberoptic scope) is often done
d) If any lymph glands in the chest are suspicious for being involved, they are biopsied  

Part 2:  Integrative Medicine & Wellness Group

1.        Integrative Medicine incorporates treatment of:
a.        Mind, body and spirit.
b.        Combines the best of traditional & complementary medicine
c.        Focuses on the whole person
d.        Addresses physical, mental, emotional & spiritual needs
e.        Offers a complete circle of care

2.         Lung Cancer is divided into four stages:  1, 11, 111 & 1V.   Stage 1V is      
Metastatic.  This means the disease has spread to other areas of the body.

Treatment options are based on the stage of the disease at the time of diagnosis.
  •   Treatment for Stage 1V - when the disease has metastacized (meaning it has spread to
    other   organs such as the brain, liver and bones) consists of chemotherapy,
    sometimes radiation, and sometimes palliation/comfort care depending on how sick
    the person is.

  •   Stage 1 & 11 are early stages; the tumor is confined to the