African-Americans Need Donated Organs, particularly Kidneys.  Quite often relatives can donate to each
other. Between 1988 and August 2007, 70,861 African-Americans have had a transplant!
Understand the Transplant Waiting Lists:
Watch our informative "21st Century Conversations"
on your local access channel during in April

The Transplant Waiting Lists Exist to Promote:
a) Equity - Fairness in the transplant system
b) Utility - Best use of scarce resources, and
c) Justice - Prevent bias in favor of or against

April is National Organ & Tissue Donor
Awareness Month.  Sign up to be a donor!

August is
National Minority Organ Donor
Awareness Month in New Haven and Southern
CT
 August 1st is National Minority Awareness
Day.  
In CT you can learn about the benefits of
organ & tissue donation every day.

Learn More. Read On

Diversity and Organ Donation FACTS

  • According to UNOS, as of Sept. 28, 2007, there are
    approximately 103,904 people awaiting transplants;

  • 49,818 are Caucasians/ Anglo-Americans

  • 54,086 patients, slightly more than half of the
    people awaiting an organ transplant are non Anglo-
    American:

African-Americans   waitings =     29,164
Hispanics                                =     16,814
Asians                                     =      6,053
Native American                    =          937
Pacific Islander                       =          526
Multiracial                              =          589
Unknown                                 =              3

  • More than half of the patients waiting for a kidney
    transplant are non Anglo-American         

  • 9 of 10 African-Americans who undergo organ
    transplant surgery receive an organ from an Anglo-
    American donor. ·

  • 35 percent of patients in the U.S. awaiting a kidney
    transplant are African-American ·  

  • 12.8% of the U.S. population, 37,098,946 people in
    the United States are African-American ·       

  • Of the 29,164 African-Americans on the national
    transplant waiting list

  • 639 have received kidney transplants ·

  • 239 African-Americans have died waiting for a
    kidney transplant in 2006 year ·

Go to
www.UNOS.org for more detailed info.

  •   Medicare helps pay for kidney dialysis and
    kidney transplant services;

  • It is more cost effective to pay for the transplant
    than to keep up dialysis ·   

  •   19,919 African-Americans were organ donors in
    2004 · Many were living donors of kidneys to
    relatives.  However, that is not so in CT.

  • 42,883 non Anglo-Americans were organ donors in
    2004 ·  

  • 121,533 Caucasians were donors in 2004   

  • In the Northeast Region 3,942 are on Transplant
    Waiting Lists ·

  • 684 are African-Americans

  • 351 Hispanics (most are waiting for a kidney

  • Every 18 minutes, someone is added to the national
    waiting list ·      

  • Everyday, 12 - 17 people die waiting for an organ
    transplant ·     

  • By the year 2010, one out of every twenty people
    will require an organ, tissue or corneal
    transplant        

  • The argument has been made that matching organs
    between members of the same ethnic and racial
    groups often enhances successful transplantation. ·

  • Hypertension is a major cause of kidney failure.  
    As this hypertension often goes undiagnosed and
    untreated, it frequently results in end-stage renal
    disease and eventual kidney failure. ·       

  • African-Americans are four times more likely than
    Caucasians to be on dialysis due to kidney failure. ·  

  • The most effective treatment for kidney failure is
    transplantation ·

  • Here is  HOW ORGAN RECIPIENTS ARE
    SELECTED:

  • The National Transplant Act of 1984 established
    full and equal access to donated organs and tissues
    for all potential recipients on the basis of need and
    availability, not race or wealth.

  • You may be seen as an outpatient or be admitted to
    the hospital for evaluation of your disease because
    your doctor feels that a transplant might help you.

  • The purpose of this evaluation is to determine
    whether a transplant would be good for you. The
    hospital stay is several days.

  • While you are hospitalized, you will have many
    blood and skin tests, x-rays and perhaps a cardiac
    catheterization.

  • These are special tests that will help them to
    understand your disease and other aspects of your
    illness.

  • On rare occasions they discover something that
    would make the transplantation too dangerous.

  • A computerized waiting list developed by the United
    States Department of Health and Human Services
    (USHHS) uses a ranking algorithm to match
    donated organs to potential recipients nationwide.

  • The point system, uses criteria included blood type,
    medical urgency, and time spent on the waiting list
    to determine ranking priority.

  • For heart, liver and lung transplants, criteria also
    include the size of the organ in comparison to the
    patient and the distance between the donor’s
    hospital and transplant center.

  • Tissue typing, organ function and other complex
    laboratory tests are done for all transplants.
  • This testing ordinarily takes from eight to 12 hours.

Griffin Hospital has published "
A Guide to Family Health
History."
 We think the guide is very helpful.  Visit their
website at:
www.griffinhealth.org or call them toll-free at:
800-354-3094; local (203) 735-7421.  To learn about their
various services and programs, call (203) 732-7211
We Need More Organ Donors

In CT you can join the DMV Donor
Registry by indicating it on your license.

As of Dec. 2006 -  239 African-Americans
have died waiting for a kidney transplant
this year ·

High Blood Pressure (HBP) is a major
contributor to kidney failure.

Diabetes is proliferating

Diet & exercise can help to reduce the
effects of HBP and Diabetes.

If you have HBP & Diabetes in your family,
get a check up; know your numbers for each.
Keep an updated record.

If your blood pressure is high,  work at
lowering your it.  Walk briskly everyday for
at least 20 mins. African-Americans are 17
times more likely than Caucasians to
develop hypertension (HBP)

Be proactive with & about your
health.  Take good care of yourself

MORE DIVERSITY IS NEEDED IN ORGAN &
TISSUE DONATION & Bone Marrow Donation.

  • A shortage of organs donated by
    minorities contributes to a longer
    waiting period for many minorities.

  • Fewer minorities are eligible to become
    living donors; however, this is not
    necessarily because of inequity in the
    system.  Please learn more about this!

  • Minorities can help themselves greatly
    by becoming better informed, more
    proactive, and more effective advocates
    for themselves. This is YOUR life!

The longer the patient waits for a transplant,
the greater the risk of dying before the
organ can be found.
Please become a donor.

One person of any race, gender or ethnicity
can donate organs and save  up to 9 people.
Tissues from one person can enhance life for 50

Many African-Americans & Hispanics in CT
have had successful transplants and are
living healthy & productive lives.  

Post-transplant recipients in Greater New
Haven vary from 5 months to 38 years &
going!  Organ transplants work for many.

Watch "21st Century Conversations" w/N'Zinga
on your local access channel for educational
programs on organ donation & transplantation.

Knowledge IS Power!
Get informed about this life-saving
topic.  You can only benefit from it.
Read more at: Organ Transplants

http://www.nasw.org/finn/organ.html

Tranplant information resources:
Resources for Patients and Families
www.mottep.org
www.modep.buffalo.edu
www.shareyourlife.org
www.donatelife.net
www.unos.org
www.organdonor.gov/signup
www.giftoflife.org
www.nkf.org
www.cnn.com/Health/library/DG/
www.forward.com/articles

http://www.transplants.org/OrganTissueDonation.php

http://www.newstimeslive.com//story.php

http://www.transplantexperience.com/
Every transplant experience is unique; learn all you can.
You can sign up at this link to get more information

Fear is NOT the answer.
Be Proactive and Be informed

Thanks be to a donor family in 1988; their gift
of a donated heart gave my friend 18 additional
years on this earth.  She was able to see her
children become adults.

You can make a difference; sign your donor
card and
tell your family of your decision.  One
complete donor can save up to 9 lives with
organs and enhance the quality of life for 50-60
people through tissue graphs.
Become an organ & tissue donor.
OneWorld HealthCare
Information TV Programs
Get Informed.
African-Amers Waiting for Organ  
Transplant in Sept. 28, 2007 = 29,164

I
n CT a kidney is the organ most needed.   
African-Americans are waiting for
transplants.  Be a Donor. Sign a donor card
Visit: Minority Organ Tissue Transplant Education
Program  to learn more.
Hispanics Waiting for Organ Transplant:

As of Sept. 28, 2007, 16,814  Hispanics  
are waiting for an organ transplant
  • 12-17 people die every-day  
    while waiting for a transplant.  
  • We do not have enough
    organs.
  • Please consider being a donor
Asians Need Donated Organs & Tissues. No.
of Asians waiting Sept. 28, 2007 = 6,053
Be a Donor!  Sign a donor card.  Tell your
family about your decision.  You can make a
Positive Difference! Sign a donor card now!

Copies of our Health Care Literacy Programs are
available to the public.  To order a copy of any of our
TV programs, please call 407-0250.
Place your order using the title & PT # listed below.


Nutrition, Obesity and Chronic Diseases - HL #15

Women's Gynecologic Cancers - Health Literacy #14
Cervical, Endometrial, Ovarian & Uterine Cancers

Men's Urologic Cancers - Health  Literacy #13
Bladder, Penile, Prostate & Testicular Cancers

" Understanding Treatment of Breast Ca Stages "  - PT 12

" Understanding Stages Breast of Cancer" HC Lit. - PT 11

" A Heart Health 101 Conversation" HC Literacy - PT 10
(This is a 90 mins forum with a studio audience)

"The Anatomy & Function of the Human Heart" - PT 9

"FSGS Kidney Disease" - Health Care Literacy -   PT 8

"Your Kidneys and Your Health" - HC Literacy -  PT 7

"Prostate Cancer PT -1" - Health Care Literacy -  PT 6

"Moving On After Cancer" - Health Care Literacy -PT 5

"Treatment Advances in Lung Cancer " HC Literacy PT 4

"Lung Cancer & Integrative Medicine" HC Literacy PT 3

"Breast Cancer Diagnosis & Treatment Options" - PT 2

Breast Cancer Education - Health Care Literacy PT -1
" Diversity in Breast Cancer  - Genomics to  Racial  
Disparities"  Drs. Shon black, Lyndsay Harris





Other new health-related programs available are:

"Black Women In Medicine" &
"Women In Medicine" (seven multicultural MDs)

Women : Call  (203) 688-6800  at Yale NH, or 789- 3000 St.
Raphael's to schedule a Mammogram - Remember, early
detection is critical to successful treatment.

White men over age 50, Black men over age 40, be sure to
get your annual PSA and DRE tests done for Prostate
Cancer.  Early detection is helpful in the choice and
effectiveness of  treatment.




Organ Transplant & Waiting List Information:

Key Issues that Hinder Someone Getting Listed for an
Organ Transplant are:

1. Testing not updated - critically important

2.. Txp Center does not have patient's current phone
number (seems simply, but very important)

3. Candidate does not have a working phone

4. Non-compliance information - Compliance is Critical
at every stage of transplant-related process

5. Severe diabetes and, or high blood pressure

6. Lack of age appropriate cancer screening

After the candidate is listed, other barriers and issues are:

1.  Patients have 30 mins to say yes or no to organ
offer; therefore, patient must be completely ready;

2. Finding organs with ABO - blood type compatibility;

3. Cross-matching problems;

4. Non-compliance issues; again, complience is a must

5. Medical history of blood transfusions, pregnancies,
antibodies, etc., can prevent patient getting transplant

6. There might also be other health issues that are
discovered,
or develop after the patient has been listed

Once Listed, Patients Are Responsible For:

  • Working with the Transplant Team to keep
    medical testing current;

  • Typically, all tests are repeated annually;

  • Waiting time depends on patient's blood  group.

Typically -
Blood Group A -       )
Blood Group B- &    )  
 Wait for about 3 years
Blood Group A&B    )

Blood Group 0 - Wait  for about 5 - 6 years

Some relatives and friends can donate a kidney or a
piece of liver to each other; however, careful and
thorough testing must be done and the potential
donor must fully understand the risks involved.

Who can donate depends on many factors, and those
considering donation should first become fully
informed by health care professionals.
The information in this section is presented as a service to the community; it is for information purposes only and is not intended, nor should it be substituted for the advice
or information provided by your own health care providers.  Get informed!  Knowledge is Power!
Get Involved with OneWorld Progressive Institute, Inc.
Nationally, as of Sept. 28, 2007
49,818 Caucasians are waiting for a
transplant.

  • The organ needed most by everyone
    is a kidney; the second most needed
    organ is a liver, and the third most
    needed is a lung followed by a heart.  

  • 12-17 people die every-day  while
    waiting for a transplant.
  • We do not have enough organs.

  • The gift of skin can repair severe
    burns and help to remove the pain &
    stigma of ugly scars.

Learn about the Myths at:
www.healthsearches.org/Myths.htm .
www.newhavenindependent.org
Potential transplant recipients must learn to be good advocates for themselves, and form
effective partnerships with their transplant team.  There are two transplant centers in CT -
Yale Transplant Center & Hartford Hospital Transplant Center.

  • Sources:(OPTN) THE ORGAN PROCUREMENT AND TRANSPLANTATION NETWORK

  • (UNOS) UNITED NETWORK FOR ORGAN SHARING, 2005CQ RESEARCHER, 2005(HRSA)
    HEALTH RESOURCES & SERVICES ADMINISTRATION

  • (MOTTEP) MINORITY ORGAN TISSUE TRANSPLANT EDUCATION PROGRAM

  • Americans continue to strongly support the concept of donating organs or tissues for
    transplantation. The proportion of survey respondents who said they support or strongly support
    organ donation rose from 93% in 1993 to 95% in 2005; however, effective & timely education and
    prior discussion seem to be at the heart of following through on donation at the time of death.


If you have questions, please do not hesitate to contact Madeleine Hess at 301-443-6866.  
Get Reliable Alzheimer's Information at:
http://alzheimers.about.com

Also visit: www.accessexcellence.org - for additional
information

Get Informed!    Become Empowered!    Take Action!

  • All women who have a
    family history of Breast
    Cancer, whether on
    the father's  or
    mother's side of the
    family should start
    doing breast self
    examination very
    early.  

  • If a parent was
    diagnosed with Breast
    Cancer before the age
    of 50,
  • Women in that family
    should learn how to
    do their self exam
    starting in their teens

  • Start getting
    mammograms 10 years
    earlier than the age of
    the parent's diagnosis.

  • For women without a
    family history, start
    mammograms at age 40

  • It is recommended that
    women start getting
    mammo- grams 10
    years before the age
    your mother or father
    was diagnosed.

Discuss with your
personal physician at
what age you should start
getting a mammogram.
Learn to be an Advocate for Yourself
OneWorld
    Inc.
OneWorld Progressive Institute, Inc., is a 501(C)
3 Community Organization and Public
Charity which focuses on:
  • Health Care Literacy, Access,
    Advocacy, Effective Communication
  • Reducing Disparities and Improving
    Health Care Outcomes for
    Disenfranchised Populations.
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